We are doing well. Jim is getting stronger every day. They put him on steroids for his graft vs. host disease and that seams to have also increased his energy. He actually ate 650 calories yesterday and was up walking twice. If all continues to go well I think we will be able to get him home this next week. He will be on home health and have physical therapy and need to go to the clinic three times a week but none the less, he will be home. Yea! Keep your fingers crossed.
The kids and I are busy in the evenings getting the house ready for Jim. Because he will be immunocompromised for quite some time, we are cleaning, painting, changing filters and even are getting new carpet. (Good excuse for new carpet, huh?} I just couldn't see cleaning that deep but bringing him home to 20 year old carpet. That had got to be harboring some yucky stuff. So, we will be spic and span around here. The doctors told us just to plan on some hospitalizations after for various infections, but we want to prevent as much as we can. Last transplant I went through Lysol like I go through milk. Time to stock up again.
Today I AM THANKFUL FOR my good health and energy to carry out all of this preparation.
Friday, April 9, 2010
Tuesday, April 6, 2010
Day 26 Post Transplant - 35 Days in Hospital
Quick Update:
Jim is doing well. Blood counts are good. He is still pretty weak since he spent 2 weeks in bed in the ICU. Physical Therapy is starting to work pretty hard with him so we can get him home. He is not eating well at all. He has no appetite and has some stomach issues. They are not sure if it is medication related or Graft Vs. Host Disease. They start him tomorrow on the Marijuana pills again hoping that they will stimulate his appetite. It worked before so we will see. Bottom line, before he comes home he needs to (1) Be stronger and more active (2) Be eating and tolerating food (3)Have stomach issues (? Graft vs. Host}resolved or treated. These sound like they could take a while but I notice an increase in energy each day. I don't think we will get him home this week, but I would not be surprised if he gets to come home next week. Anyway, I am not frustrated because He is alive and I see progress each day. It may be baby steps but as long as we are moving forward I am good.
Today I AM THANKFUL that I finally got my Suburban out of the shop. Yea!
Jim is doing well. Blood counts are good. He is still pretty weak since he spent 2 weeks in bed in the ICU. Physical Therapy is starting to work pretty hard with him so we can get him home. He is not eating well at all. He has no appetite and has some stomach issues. They are not sure if it is medication related or Graft Vs. Host Disease. They start him tomorrow on the Marijuana pills again hoping that they will stimulate his appetite. It worked before so we will see. Bottom line, before he comes home he needs to (1) Be stronger and more active (2) Be eating and tolerating food (3)Have stomach issues (? Graft vs. Host}resolved or treated. These sound like they could take a while but I notice an increase in energy each day. I don't think we will get him home this week, but I would not be surprised if he gets to come home next week. Anyway, I am not frustrated because He is alive and I see progress each day. It may be baby steps but as long as we are moving forward I am good.
Today I AM THANKFUL that I finally got my Suburban out of the shop. Yea!
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