Day 96 Post Bone Marrow Transplant

OK, I know I suck at blogging. I guess you can figure no news is good news. Yes we are out of the hospital. It seams that most of Jim's problems were due to the digoxin toxicity. Within a few days after pulling him off the meds he got remarkably better and was discharged home. He is still weak but is able to get himself up and down much better and we have had "no passing out." That right there alone is huge. We are at the bone marrow clinic today for our weekly visit. He is getting 2 units of blood. I thought that might be the case as he was feeling a little under the weather the last few days. Yes, you do need blood. His labs are all looking better. His kidneys did take a hit during all this mess, so we are just watching them closely and seeing a kidney doctor. Also, his blood is still attacking itself so they are going to start Rituxin treatments to try and counteract this. If you remember, he received Rituxin treatments before to treat the lymphoma. His own lymphatic system did not like Rituxin before so we will see if Evan's lymphatic system likes it a little better. We can hope. So, now we get to come to LDS hospital 2 times a week. Still better than living here.

All in all, the process is slow, but as you can see we are approaching 100 days post transplant. That is a good place to be. It does not put Jim out of the woods, but clearly that is a milestone you want to reach. We finally are seeing some progress. Jim is able to come downstairs now and hangs out on the couch with his family. We are also able to have family dinner again which is huge to us. So, we keep hanging in there.

Today, I AM THANKFUL for progress.